Williams syndrome is a genetic condition that is characterized by medical problems, including cardiovascular disease, developmental delays and learning disabilities. These occur side by side with striking verbal abilities, highly social personalities and an affinity for music.
A walk to raise awareness of Williams syndrome and money for research will be held from 9 a.m. to 2:30 p.m. Saturday, May 30, at Zephyr Field, 6000 Airline Drive, in Metairie. Tara Nunez Smith is organizing the local walk, which will include a band, free food and lots of kid-friendly activities. Registration is $20 for an individual or $50 for a family of four.
To register or donate, visit walk4williams.org.
May is WS Awareness Month. Williams syndrome affects one in 10,000 people worldwide — an estimated 20,000 to 30,000 people in the United States. Proper diagnosis is critical to acquiring the medical, therapeutic and educational treatments and strategies that dramatically improve the life of an individual with WS.
Awareness month activities will help fund the Williams Syndrome Association’s research, medical emergency and scholarship funds.
For information about this event or to obtain a pledge form, visit www.williams-syndrome.org/metairie.